Beyond Chronic Pain
Resources
Associations, Education, Support Groups & Books
Pain Related to Specific Conditions
Arthritis
- Arthritis Foundation
- The Arthritis Foundation is a national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
Back Pain
- Back Pain Association of America
- Has written materials; quarterly newsletters; six support groups in Northeastern U.S.; WILL refer to specialists/spine centers nationwide.
Pasadena, MD 21122
(410) 255-3633
(410) 255-7338
Cancer Pain
- American Cancer Society (ACS)
- A nationwide, community-based voluntary health organization with state divisions and more than 3,400 local offices. ACS is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major heath problem by preventing cancer, saving lives and diminishing suffering from cancer through research education, advocacy and service. Provides 24-hour hotline.
- Cancer Care Inc.
- Provides written material, telephone support and counseling, and will locate other community services in the patient's area.
- Oncolink
- The first multimedia oncology information resource placed on the Internet. Oncolink was founded in 1994 by Pennsylvania cancer specialists with a mission to help cancer patients, families, healthcare professional and the general public to get cancer-related information at no charge.
Chronic Fatigue Syndrome
- American Association for Chronic Fatigue Syndrome (AACFS)
- Promotes the stimulation, coordination, and exchange of ideas for CFS research
Headache Pain
- American Association for the Study of Headache (AASH)
- A professional society of health providers dedicated to study and treatment of headaches.
Interstitial Cystitis
- Interstitial Cystitis Association (ICA)
- Is a not-for-profit health organization dedicated to providing patient and physician educational information and programs, patient support, public awareness, and research.
Multiple Sclerosis
- National Multiple Sclerosis Society
- offers written material, support groups, and physician referral through local chapters.
Orofacial Pain
- American Academy of Head, Neck and Facial Pain
- Focuses on the diagnosis and treatment of TMJ.
- American Academy of Orofacial Pain (AAOP)
- Offers a TMJ brochure for patient's online.
- TMJ Association, Ltd.
- Offers written material, 29 support affiliates and a hotline that refers patients to other patients.
Peripheral Neuropathy
- Neuropathy Association
- A non-profit organization established by people wih neruopahty and their families or friends to help those who suffer from disordes that affect the peripheral nerves.
- Reflex Sympathetic Dystrophy Syndrome Association (RSD/CRPS)
- Has written material, about 100 support groups nationwide, and sill send its list of physicians in the patient's area.
Shingles
- VZV Research Foundation
- Offers written information on Zoster/Shingles pain.
Sickle Cell Disease
- Sickle Cell Disease Association of America, Inc.
- Offers printed materials and list of physicians in patient's area.
Vulvar Pain
- National Vulvodynia Association
- A nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.
Pediatric Pain
- The Candlelighters Childhood Cancer
- Educates, supports, serves and advocated for families of children with cancer, survivors of childhood cancer, and the professionals who care for them.
Pain and Addiction
- American Society of Addiction Medicine
- A medical specialty dedicated to educating physicians and improving the treatment of individuals suffering from alcoholism and other addictions.
End of Life Pain
- American Pain Foundation
Complementary and Alternative Medicine
- University of Pittsburgh Complementary and Alternative Medicine
- A resource for complementary and innovative therapies. Updated regularly
- Oregon Health Sciences University
- A comprehensive complementary and alternative medicine website resource list including academic institutions, journals, organizations, specific therapies, and general links.
- National Center for Complementary and Alternative Medicine (NCCAM)
- At the National Institutes of Health, Offers general information about complementary and alternative healing practices.
- M. D. Anderson Cancer Center's Complementary/Integrative Medicine Education Resources
- A website that contains evidence-based reviews of complementary of alternative cancer therapies as well as links to other authoritative resources.
- Rosenthal Center for Complementary and Alternative Medicine
- A website that contains CAM approaches to cancer and women's health as well as general CAM information.
Contact Rebecca Rengo anytime by email or by calling toll-free 1-866-934-5065
6209 Mid Rivers Mall Dr.,Suite 199
St. Charles, MO. 63304
(636) 300-3948
866-934-5065